I have seen some thought provoking writings the last couple of days. For some reason they seem to touch the same subject with me which is fate and the acceptance/denial of this.
The first issue was a tumblr pic circulating facebook:
Initially I thought Jim C. is a nice guy (and I still think so). I also understood exactly what he meant by this statement. That even with oceans of money, you can still be lonely, lost, craving love and acceptance etc etc. I get that. I really do, Jim…
But then I got so provoked by it. And after reading an editorial in the danish newspaper Politiken by Marianne Eilenberger: “Jeg gider fandeme ikke smile, når livet krakelerer”, where she adresses the whole “embrace your destiny with a smile” attitude towards life, I decided to do some deeper thinking on the subject.
I cannot speak on behalf of all special needs families and the truth is, we all come from different backgrounds and even countries.
But I am pretty sure that each and everyone would agree that having money makes life a lot easier. A LOT…
I agree with Jim Carrey that the basic foundation doesn’t change. Money will not remove our childrens disabilities nor take away the grief in the families.
But it makes a world of difference how much money you have when you speak of the daily care, the proper medical assistance, the right special aides and so forth.
It also matters on the subject of self esteem, on how much it wears you down and on the amount of extra hands to relieve the everyday jobs that are numerous and extensive compared to non-disabled children.
In honesty, my country is still better at helping special needs families than a lot of other countries, but compared to what we pay in taxes to have this governmental health insurance it is in no way returning on its investment. And as I have touched on before, the humiliation that you have to go through to get your basic rights (by law and paid for by taxes) is so destructive for ones spirit and self esteem. Who wouldn’t rid themselves of that if they could? Never to set foot in an office asking for help again? Every single one of us, I am sure.
So money does matter. Even more to families in countries with poor or no health insurance. It might be life and death for some. It also means no special aides or inadequate ones for a lot of children, which of course is the whole idea behind the Noah Lequime foundation.
Yes we all survive with what is given to us. Not always with a big smile and sometimes with the wear showing. But as a friend of mine said one day; It should be mandatory to win the lottery when you have a special needs child. Economic worries should really be last on our lists but too often tops them.